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If a movie were made about my dad

Who would play my dad?
Jet Li.

Happy Yum Yum Day!

Happy Paczki Day!
(happy fat tuesday too)

Don't forget some of these...

tag: http://pics.livejournal.com/mai_ling/pic/000acf39/g6

I've already been eating my fill, Just too good not too.

December the First

december 1st = day without art

december 1st = world aids day

means you are allowed to be naked for a day.

december 2nd you put your clothes back on.

in memory of chuck


Although I haven't been writing the countdown here, I've
been tweeting it and forwarding it on facebook. But no matter
what, I wouldn't have forgotten anyways! So surprise,
TODAY it arrived!

What a busy weekend. I ended up working Mariano's on Friday night
in Vernon Hills, concert on Saturday Morning then a family gathering
afterward that and this morning I worked at the Mariano's in a
split shift in Northfield.

So it's been a very busy weekend but that doesn't mean we won't
Celebrate the big day either! And it's the 40th so it's a big ONE!

When I was pregnant with Lilly On-Ling,
I ate Watermelon which DID NOT spike my blood sugar. But
what was funny, I ate more Cucumber's than watermelon
during that time. So I'm a watermelon baby and I guess
she's a cucumber baby. Same family of fruit no matter!

It's been an extremely difficult and tough few weeks for me.
Since 1998, it has always been. This year has been the
toughest. I didn't think it would have hit me soo hard
not having my father with us. Yet it has. I thought I would
have gotten through it much easier knowing I have Eric
& Lilly On-Ling on my side, but emotionally on the inside
it's been harder. I haven't shown it, but I haven't been
much for socializing as normally would be.

I wanted to make this summer special. With Lilly On-Ling
just turning one this year, I was hoping to take my family
to Abbott's in Colon, MI this year. So Lilly On-Ling
can see her grandfather in the limelight and see why he is such a
special man to soo many. Why he is so inspirational and a
wsuperstar in his own right. I wanted her to see people flock
to him as if he was one of today's celebrities. Well,
to many, he is a celebrity. If anything, he is even more
celebrated in the world than before. But this year is not
that year to go. Although I still wanted to go because it was
my birthday weekend, I am finding it emotionally too difficult.

Not having my father with us, is felt. Not just a home but
all over. I know how much he and my mom is loved by so many.

But I digress, I know he wouldn't want me to get this way.
So instead, let's get happy and Celebrate! Watermelon Day!


Everyone should eat watermelon today
and celebrate with me.
For its Watermelon Day!

I only eat watermelon once a year and its only on Watermelon Day.
(every August 9th).

The story for my new friends ...

What is Watermelon Day?!?!?!?!Collapse )

Why does my family celebrate Watermelon Day?!?!?!?!Collapse )

Now its even important more to me more than ever Collapse )

I know its silly.
Silliness makes the world go 'round.

just don't forget to...
eat watermelon!

and celebrate with me.


Gung Hay Fat Choy!

Gung Hay Fat Choy! Happy New Year to my friends and family! Today we start the year 4713 and 14 days of celebration of Food, Fun and Fireworks. Wishing everyone a year of healthy, wealthy and lucky new year! Today I'm giving a lecture about the new year and shall have lots of fun. Giving Lilly On-Ling her Red Envelope of lucky money today too, just like my parents did for me


Happy Yum Yum Day!

Happy Paczki Day!
(happy fat tuesday too)

Don't forget some of these...

tag: http://pics.livejournal.com/mai_ling/pic/000acf39/g6

I've already been eating my fill, Just too good not too.

RSD is 24 hours a day, 7 days a week.

LINK: http://princessinthetower.org/a-letter-to-those-who-do-not-have-crpsrsd/

I found this extremely interesting to read.
My husband has CRPS along with Peripheral Neuropathy, Distal Neuropathy and Small Fiber Neuropathy. It is from his severe grade II ankle sprain with ligament tear that caused it that never healed properly.

Everything this woman wrote is exactly how my husband copes with his everyday.

He is on no pain meds. None of the pain med treatments works. The pain management doctor we went to does not believe in Narcotics. Since regular medication did not work the only option was a SCS.

So he deals with the nerve diseases and the chronic everyday migraines without medication. In many ways it tells his body when it needs to take it easy,
or he should just rest. When it's a bad day. The triggers of what causes
specific pain in his body. The other side is that he won't have any longterm issues with his liver or kidney's.

I encourage you to read the entire letter. It is worth you time.

This is my favorite part of the letter:

Maybe the person sitting next to you at dinner touches your RSD arm, or your foot gets accidentally kicked at the pew at Church, or your leg gets bumped into at school; all these things seem harmless to the average person and they may not understand how they could ever cause pain to an RSD patient, but trust me, they can and do.

Some people can even have a light breeze cause them excrutiating pain. I know what you are thinking, “that is crazy”. No. That is RSD. If you think it’s crazy, and I am telling you from a knowledge background, think how a patient who knows nothing about the disease feels when they start forgetting things, especially when their pain is high?

Or when the slightest touch, even the caress of a loved one, the kiss from a spouse, the touch of the sheet on the foot, the tightness of a sock, sometimes even the very breeze itself blowing over the body, can cause such pain to the patient it will bring tears to their eyes. Think of the confusion and terror that brings into their lives.

And when their friend and loved ones sit there, make fun of them and disbelieve them when they try to explain how it causes pain, well, that hurts them even more. When a disconnected Doctor doesn’t believe you that is bad enough but when a loved one doesn’t believe you it hurts almost as much as the pain. And let me set the record straight here on the pain, there is no pain like the pain of RSD/CRPS.

That isn’t just from a patient or an advocate, it is documented. RSD pain is ranked higher than any other form of chronic pain known today. RSD is ranked on the McGill Pain Index as the MOST PAINFUL FORM OF CHRONIC PAIN THAT EXISTS TODAY!


December the First

december 1st = day without art

december 1st = world aids day

means you are allowed to be naked for a day.

december 2nd you put your clothes back on.

in memory of chuck

Lilly On-Ling at Twenty-Four Months

On July 23rd our little girl turned two at 5:38pm.
Can't believe I went into the hospital to be induced
and the next night she came into this world.
So much has happened and changed since then.

She is precious as can be and growing like
a weed. She is also like a sponge.

Lilly On-Ling has her own routine.
And her own ways.
She like her PBS shows during the day,
her playtime included in the morning.
Sprout at the end of the day.
She spends at least 2 hours of learning through
out the day. We don't push her to learn,
she does it on her own.

Since before the two year mark, she knows
all 26 letters of the alphabet. Her shapes
and colors. Knows who all the engine characters
are from Thomas the Train and also the Cars
characters. She may not 'sing' or 'say' the
alphabet but she knows the sounds of all
the letters.

I guess introducing her to "Super Why"
at 9 months helped. And she loves "Peg + Cat"
so I guess math isn't too far along.

She is currently concentrating on logic
and analytical solving, numbers and sentence

She is literally HOOKED ON PHONICS.
Seriously. I downloaded the $50 app and she can't
get enough of it. Now she loves her Mr. Pencil
to start writing.

And when you call her a 'Smarty Pants' She will
look down her pants.

If you call her 'Cute as a Button' she will show
you her bellybutton.

On her birthday we went to the Mars Cheese Castle.
It was a good time. She loves cheese. Had lunch there
and bought Cheese bread, elephant ear and a turtle kringle.

Then we took a tour of the Jelly Belly factory. She loved
being on the train. Her attention to everything was
adorable. She didn't get scared or act out. She even
kept her hat on.

Then we headed home and enjoyed the rest of the afternoon.

She does have her moments as a terrible two but I think
she is just so aware of things. Once she figure it out
its on to the next thing. She figures things out quickly.
So if we don't keep her stimulated she does get cranky.

However, we work around all that as much as we can as well.

We went on a three day camping trip to Fremont, WI and rented
a cabin. It was beautiful and fun. We explored Waupaca
and Appleton. Next time we go up there will be for the Air
Museum in Oshkosh. So she has gone on two vacations and
tolerated a lot of driving.

But the memories are the best thing we are creating.
And in her two years that have been many wonderful ones.
And we will continue to make them as the days, weeks,
months and years go by.

Happy Two Year our little Peaceful Beautiful Lotus...
and many many more!


2014-07-23 21.02.29

2014-07-23 14.39.00

2014-07-23 14.24.19

2014-07-23 13.33.08

Mai-Ling :: Pioneering Alternative-Classical Pianist

Frances Mai-Ling is pioneering the genre of Alternative-Classical music; taking classical piano to new level giving it a fresh sound of the traditional and the current trend of rock, pop, alternative. Creating a new genre that is powerful, for people of all ages can enjoy. Since 2001, she has taken her creation of Alternative-Classical merging the sparkling qualities of classical music with the emotional melodic style of many generes, all within an intimate setting of Mai-Ling and her music. She got her first start in show business with her parents magic show , but chosed music over magic. Mai-Ling is a trained classical pianist, with only having two years of piano lessons under her belt. Performing a program of original music. Mai-Ling is co-founder of EastWestNow Records. The first record label & collective that promotes artists of Asian Ethnicity. Focusing on artists who are half-Asian. Mai-Ling is HAPAnese (a term she coined being 1/2 Chinese & 1/2 Polish). She is also one-third of "The Shake n' Poe Project", where she write music to the text of Shakespeare. Founder of the creative artists group "Notes & Poets: Bringing the Creative Artist to the Stage." She has scored music for theatre and film, along with a various amount of side projects to her credit. Besides being a published composer, she is also a published writer and visual artist. Mai-Ling is an independent artist.

In addition to her creative arts efforts, Mai-Ling works with the American Heart Association and its division the American Stroke Assocition. As an Go Red For Women ambassador and American Stroke Association ambassador. Mai-Ling formed the "Take Heart Awareness Cause" in 2005 to help bring her personal crusade of helping create more awareness of heart disease and stroke to the public forefront.. She has been recognized regionally and nationally with the "Heart & Stroke" Hero Award for her "outstanding efforts to create a healthier community, safe from the devastation of heart disease and stroke." She help's create awareness of the #1 and #3 killers among men and women in the United States. A portion of every CD she sells includes information and a portion is donated to the AHA for research and eduction programs. One of the first pioneers in merchandising her CDs for a specific cause.

She is currently working on a new release for the winter, a book project for next summer, and continuing her line of hand painted purses and jackets.

For more information about Mai-Ling please download her complete 40 page press kit at her website.


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